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The unexpected wonders of my son's short life | James G. Robinson | Your Body on Tech

Explore episode Jun 28, 2026
Science
He's His Own Cardiologist

The unexpected wonders of my son's short life | James G. Ro… · Jun 28, 2026 Science

While in the hospital, Nadav's body grew entirely new veins to rebalance a circulation his heart couldn't sustain. Robinson calls it magical. The surgeon who operated on him for ten hours said she could read his character in the quality of his scarring. Most of us cut a finger and forget the healing. Robinson can't take it for granted anymore.

Where this was said

Conversation: Technology, Medical Progress & the Ethics of Genetic Optimization

At 51:30 · chapter starts 49:50

Manoush asks whether Robinson ever held out hope for a technological breakthrough — a gene therapy, a new procedure — that might have saved Nadav. Robinson acknowledges medicine is advancing rapidly, but insists that the three surgeries Nadav endured were not cures but hacks, and that humility about the limits of what medicine can know is itself therapeutic. He speculates that in 80 years, a single-ventricle diagnosis may be corrected in utero — but then turns directly to the harder question Manoush poses: should embryos be genetically screened to avoid defects like Nadav's? His response is firm and personal. Doing so would have meant never knowing Nadav. And that would have been the worst thing he could imagine. The privilege of parenthood, he argues, comes precisely from embracing what you cannot predict or control.

Society & Culture
Genetic Optimization and the Child You'd Never Meet

The unexpected wonders of my son's short life | James G. Ro… · Jun 28, 2026 Society & Culture

Would you genetically screen embryos to eliminate a defect like Nadav's? Robinson's answer is a counter-question: would you prefer never to have met him? He's not opposed to medical progress. He's opposed to the assumption that optimizing for health always produces a better life. Some of the most profound human experiences come precisely from what we cannot control.

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